October 2005

October was a sad month. We worried something was wrong with Grace and took her to the hospital for tests. While we waited for the results, we were quiet at home, with each of us praying Grace was okay. On October 12, Grace was diagnosed with Krabbe disease. We were told there was no cure and to try to keep Grace comfortable. An NG feeding tube was placed. On the way home and for days after the diagnosis, it rained and rained. Perhaps tears from above…?

At home, we struggled with the fact that Grace was going to die and worried it would happen right away. Alysia continued to take pictures of Grace.


gracepolka4
halloween2
IMG_0296
IMG_0297
IMG_0310
IMG_0312
IMG_0314
IMG_0316
IMG_0318
IMG_0327
IMG_0333
IMG_0334
IMG_0338
IMG_0383_0007_6
IMG_0418
IMG_0425
IMG_0428
IMG_0433
IMG_0478
IMG_0493
IMG_0499
IMG_0501
IMG_0514
IMG_0517
IMG_0527
IMG_0529
IMG_0531
pink
pinkcrib
zoo2
 
 
 
krabbe_disease_home
krabbe_disease_ABOUT
krabbe_disease_PHOTO
krabbe_disease_poems2
krabbe_disease_grace
krabbe_disease_fundraising
krabbe_disease_events
krabbe_disease_tshirts2
krabbe_disease_contact
Website Design: Maryland Web Designers, Inc.